Acknowledgements

 
Susan Brumley, R.D., nutritionist at the ALS Clinic in Phoenix, Arizona, was the first person to suggest writing a cookbook for those with eating difficulties, since there was such a lack of creative solutions in print. Her appreciation of our efforts gave us the confidence that a dysphagia cookbook was needed and possible.

Pamela Mathy, Ph.D., CCC-SLP, Director of Clinical Services at Arizona State University’s Speech and Hearing Clinic, supplied the information on general swallowing recommendations and general food considerations that appear in the Introduction. Her individual work with Jackie as well as her many public presentations and writings on dysphagia helped crystallize the principles on which to base the recipes.

Jackie’s neurologist, Todd Levine, M.D., Clinical Assistant Professor at the University of Arizona and Director of Samaritan ALS Clinic, graciously wrote the Forward. He understands eating difficulties on a personal level, since during the writing of this book he experienced a temporary feeding tube placement. He enlisted his wife, Mary Landau-Levine, M.D., Pathologist with Scottsdale Healthcare, to create the sketches for the Forward that illustrate the swallowing mechanism and neuromuscular pathways. Our deepest appreciation extends to Dr. Levine for inspiring his patients and their caregivers to take proactive measures in their own care.

Many of our friends and relatives contributed recipes or cooking ideas, which have been incorporated into the book. We appreciate the special efforts they devoted to the project and thank them for the good meals and hospitality at their homes.

The staff of the ALS Association, Arizona Chapter, has been a constant source of moral and physical support. Through the Association we have met and received inspiration from patients and caregivers. We have also learned much about courage and commitment from Curt Schilling, star pitcher for the Arizona Diamondbacks and an Honorary Spokesman for the ALSA, and his wife, Shonda, who serves on the board of directors.

Ron Pitkin, president of Cumberland House Publishing, saw the need for this type of book, and editor Mary Sanford paid thoughtful attention to myriad details. I gratefully acknowledge their support.